Saturday, May 24, 2014

Lupus: Day 8, no meds

So Friday I was feeling pretty crappy, so much so that my boss sat me down. Got a massage after work to try and alleviate some of my discomfort. I must have worked because despite how I was feeling physically I got home and managed to clear out three bags of things that needed sorting since the move, hang a picture in the room, and cook dinner. Insomnia kicks in and I don't make it out of the living room until 4 AM only to wake up feeling like Superman at 9 AM. Cleaned the entire kitchen, swept and mopped the living and dining rooms, showered, went to lunch and then to the museum. Mistake 100 was the one that pushed me over the edge. Feeling sick and EXHAUSTED.  Home in bed but I needed to document the list of events.

As I was having more and more problems with mobility I simply couldn't figure out what happened that changed the way I was feeling. Then I remembered my spoons. I think between yesterday and today I raided the cutlery cabinet and used everything within reach. EVERYTHING. Now my ass is in bed trying to sleep my way through the malaise but I simply can't. Ugh...this damn disease is so unpredictable. People always ask why I am so reluctant to make solid plans...this is why...I never know how it's going to go. From one hour to the next today I slipped down a slippery slope. Over it.

1 comment:

  1. I admire your courage and determination. Life is unpredictable and we do what we have to do to make it through everyday. Whenever you have insomnia please do not hesitate to call me, we both can have insomnia together.

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