LUPUS: Day 34, No Medication

Today is day 34 with no meds and the first time I've seen my doctors. Lupus is once again giving issue to some organs. Docs did their blood work and gave an analysis, osteoarthritis has spread, doctor believes I'm now in osteoporosis stage with bone density. Will know more after blood panel comes back. Neurological disorder appears to be Fibromyalgia but still no meds until I see Neurology at UCLA next month. Back on low dose neurontin and cymbolta to start. My neurologist looked at me like I had three eyes when he found out I was still working, much less full  time. Neuropathic pain has increased due to the Fibro. BP is out of wack due to the Lupus, 162/126 isn't a good thing. Ordered to rest and relax. Hard for me.

Lesson: Do not take your ability or health for granted. We all have our issues and our things to face. No one person can say theirs is worse than the next person, as we can never truly understand what the others pain is. Life is a treasure and those we choose to share it with even more. No one said it would be easy, but what we've achieved has been done by drive and perseverance. Breathe. Listen to it, feel it, control it. A moment to yourself to reflect on how things are affecting you give us the opportunity to adjust things where they need adjusting. Nothing is easy but everything we want to achieve is worth having if done in good faith. HUG...a 20-30 second hug releases endorphin's in our system that have a remarkable affect on our well-being and help reduce our levels of stress and anxiety. As hard as I have become, I am once again learning to drop the walls and allow good energy and well wishes, through affection or otherwise, to have the positive affect on me that they should. Mentally and otherwise. Talk, express, LAUGH...even when you feel you don't have reason. Laugh at your position and adversity and see how the heart and mind become airy and willing to partake in something not so heavy. It changes you. Don't give up. Even with limitations we all have something to share and add. Love and Light create our "yellow brick road".