LUPUS: Day 26, No Medication.

LUPUS: Day 26, No Medication. This is still proving to be an interesting ride. While some things have seemed to calm down a little, others have not, and some have popped up that were quiet. I've been pushing myself to walk without a cane and although painful, I've managed to get my wobbly ass around for the last two days. A little slower, especially at the start, but I’m movin J. The muscle and joint weakness still persist along with pain but I can tell my mind has worked out ways around it so that I’m not so focused on it. Of course the neuropathy in my hands and feet continue but I've been listening a lot more to my body so that has helped. My appetite is still pretty poor but I've been trying to remind myself to eat a little something even when I don’t feel hungry, especially since I've been told I look like I’m losing weight. I’m sure the vomiting that often accompanies my Lupus has more to do with that. My least favorite thing is to throw up. LEAST.

I’m excited to see the doctor next week. I’m so curious to see what has come up, gone away, gotten better, or still wants to challenge me. I’m curious to know what direction my meds are going and I’m curious to find out how my organs are doing and to see how much my bone density has dropped. I see UCLA Neurology in July as well so these next few weeks will be a big deal for me. It kind of feels like I've been invited to this big party and as the honored guest I am waiting for the much anticipated reveal. Sick, right?