Day 21, no medication. For days now I felt like things were leveling
out and then two days ago they started to rear their ugly heads. Loopy Lou (my
pet name for Lupus) has decimated my appetite. I’ll eat once a day because I
force myself, twice if I’m lucky. I’m exhausted but can’t sleep. Joint pain all
over my body. Headaches. Neurologically I’m still having muscle weakness and
pain. Sharp shooting pain with no warning. Burning or tingling sensations in my
feet and hands. Sensation of being lightly brushed by fingers across the tops
of my feet. Tremors, blurred vision, choking. All when I thought we leveled
out. In their true nature…they did a sneak attack. Like when you turn your back
on the ocean…
Needless to say, I’ve developed more coping skills over the
past three weeks but some of that may be a sort of “immunity” to the
difficulties. Lol. I can tell you this, DO NOT EVER UNDERESTIMATE your brain.
Talk about being made painfully aware of how much it does and controls. Jeez.
If you have deal with any type of health or physical limitations…laugh. Laugh a
lot. It does so much for me. Don’t get me wrong, it’s not always easy to crack
a smile between the pains, but if you can you will see its worth. Hell, I even
laugh at the pain sometimes, for I can’t help myself. Damn shooting pains catch
me so off guard that I need to laugh in order to mask the crazy shouts that come from my mouth
with no warning. Lol. One of the new frustrations: Doc is prescribing a
wheelchair to have for the times when the neuropathy is preventing me from
being mobile on my own. I finally wrap my head around the idea of it and I call
to make an appointment to be fitted for it and so far 6 dealers in my area will
sell me a chair but do not do any type of measurements. Can I get a break here.
SHIAT!
Have a blessed weekend. MUAH
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