Friday, October 29, 2010

Stopping me? Doubt it!

Thursday morning I found out that I most likely have a degenerative muscle disease. According to my first two and third blood labs, I have elevated enzymes in my blood indicating that the muscle pain and weakness I have been fighting for the last 4 months are signs of muscle tissue break down. From pain that wakes me from my sleep to issues with walking or doing things I NORMALLY do...the tests show my body is breaking down my muscle tissue and creating a host of issues.
My blood enzyme levels have increased to 323 and I have an inflamed liver. As much as I try to function normally I am faced with hurdles everyday. Getting up from a sitting position, walking, and moving as freely as I am used to has become taxing. I, being the stubborn person I am, PUSH my way through anything that I feel may try to slow me down but I can not ignore the fact that I am taking pain meds on a regular just so I can get through my day.
One of my doctors and I have talked about some of the diseases it could be...Multiple Sclerosis and Muscular Dystrophy are among the possibilities. From August to now the enzyme in my blood indicating a tissue breakdown has gone up...and I have noticed an increase and relocation of my discomfort.
Many say that they would have no idea I was feeling this way. I lift and train to stay healthy...I squat 325 lbs, I leg press 855 lbs, I run, hike, dance, and live everyday like its my last...so I, as well as others are CONFUSED...yet when I try to get out of bed in the morning I take a minute to walk from bed to bath. When I get out of my car I lumber from seat to trunk because my legs WANT to work but don't to the fullest.
I am 36 years old...36 young years and I refuse to give in to this thing. I yearn for the day that I know exactly what it is so that I can give it a big FUCK YOU because I will not be that person. Try! Try and stop me from being who I want to be and doing WHAT I want to do...you will never win. I am too young, too strong, and too damn willing to fight for what I want.
I don't know whats to come but I know that its not me sitting on the side lines WAITING for someone to come by and try to help me be part of it all. If there is a party...I AM THROWING IT!
I know I am bigger and THIS...sharing...is my release.

2 comments:

  1. you keep on fighting.. Your a strong person, you will get through it. Don't let dust settle under your feet. But I know you wont. Being a male Nurse at the age 22, I always encourage my patient and non patient to keep on living your life, even though their might be some life changes to your body. But you shouldnt stop, always move forward never move backwards. Your blog was insipration this morning. You sound like a strong person. :-)

    Peace&Love Mylin

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  2. You have an amazing attitude. Keep up the fight. I will fight right along with you.

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